$0 Wisconsin — Dementia Care Resource Checklist

How to Prepare for an ADRC Functional Screen Without Professional Help

What the Functional Screen Actually Determines

The Long-Term Care Functional Screen (LTCFS) is the assessment that decides whether your parent qualifies for Wisconsin's publicly funded long-term care programs — Family Care and IRIS. It's conducted in person by an ADRC assessor, usually at your parent's residence.

This isn't a medical exam. The screener evaluates your parent's ability to perform daily tasks independently — how they manage bathing, dressing, eating, toileting, transferring, and managing medications. For dementia, the assessment also covers cognition: orientation, memory, decision-making ability, and whether behavioral symptoms (wandering, agitation, confusion) create safety risks.

The outcome determines whether your parent meets the "nursing home level of care" threshold. Meet it, and the door to Medicaid-funded long-term care opens. Fall short — even by a narrow margin — and your parent may be found functionally ineligible or at a non-nursing-home level of care. If you disagree, use the appeal process rather than assuming you must reapply.

You don't need a professional to prepare for this. You need documentation.

The Good-Day Problem

The single biggest risk in the functional screen is the "good day" effect. Dementia is inconsistent. Your parent may have mornings where they're oriented, conversational, and capable of describing their routine in terms that sound independent. The screener who sees that version of your parent documents what they observe and what your parent reports.

If your parent tells the assessor "I manage fine, I eat well, I get dressed myself" — and the assessor sees a tidy home and a coherent conversation — the screen can score your parent as more independent than they actually are. The result: a determination that they don't meet the nursing home level of care, and their application for publicly funded services is denied or delayed.

This isn't the assessor's fault. They're documenting what's in front of them. The problem is that a single assessment can't capture three months of progressive decline, nighttime wandering episodes, missed medications, and near-misses with the stove.

How to Prepare Without Hiring Anyone

Track ADLs for at least two weeks before the screening appointment. Write down what your parent actually does — and can't do — every day. The functional screen evaluates specific Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs). Documenting these in advance gives you a written record that supplements whatever the screener observes during their visit.

What to track daily:

  • Bathing: Does your parent bathe independently? Do they forget to bathe? Do you have to remind, assist, or do it for them?
  • Dressing: Can they select appropriate clothing? Put on shirts with buttons? Handle shoes and socks?
  • Eating: Do they eat meals independently? Forget to eat? Need prompting to start or finish meals?
  • Toileting: Do they manage bathroom trips independently? Have accidents? Need assistance with hygiene?
  • Transferring: Can they move from bed to chair, chair to standing? Any falls or near-falls?
  • Medications: Do they manage their own medications? Miss doses? Take wrong doses? Need someone to set up or administer medications?
  • Wandering or disorientation: Episodes of confusion about time, place, or identity. Attempts to leave the house. Nighttime agitation or sundowning.
  • Safety incidents: Leaving the stove on, not recognizing visitors, getting lost in familiar places, difficulty with phone or emergency systems.

Bring the documentation to the screen. When the assessor arrives, hand them the ADL diary. Tell them directly: "My parent has good days and bad days. This diary shows what the bad days look like." The screener will incorporate your observations alongside their direct assessment. The diary doesn't override their evaluation, but it prevents the score from being based entirely on a single good-day snapshot.

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What Else to Have Ready

Beyond the ADL diary, organize these before the appointment:

Medical records and diagnosis documentation. A written dementia diagnosis from a physician, neurologist, or neuropsychologist strengthens the cognitive component of the assessment. If your parent has seen a specialist, bring the diagnostic report. If the diagnosis is from their primary care provider, bring relevant visit notes or the diagnostic letter.

A list of current medications. Include everything — prescriptions, over-the-counter medications, supplements. Note any PRN (as-needed) medications for anxiety or behavioral management.

A description of the home environment. If you've made modifications (grab bars, stove knob covers, door alarms, baby gates on stairs), note them. These adaptations demonstrate the level of care need even when they're successfully preventing incidents.

Names and contact information for all involved care providers. Home health aides, visiting nurses, adult day program contacts, physicians. The screener may want to verify information or follow up.

The Screening Appointment Itself

Be present for the screen — either in person or by phone if you're remote. The assessor will interview your parent directly. They'll ask questions about daily routines, and your parent may minimize difficulties. That's common with dementia — lack of insight into their own limitations is a feature of the disease, not a choice.

When your parent says something that doesn't match reality, wait for the assessor to finish the question, then provide your perspective. Don't argue with your parent in front of the screener. Simply add context: "Mom says she manages her medications, but I set them up weekly in a pill organizer and she still misses about three doses a week."

The assessor is trained to reconcile caregiver reports with the individual's self-report. Your documentation — the ADL diary, the medication list, the incident log — gives them concrete data to work with rather than forcing them to choose between two verbal accounts.

What Happens After the Screen

The screener submits their assessment. The county ADRC uses the results to determine functional eligibility. If your parent meets the nursing home level of care, the ADRC begins enrollment counseling for Family Care or IRIS. If they don't meet the threshold, you have the right to appeal the determination.

The ADRC screening wait — often up to 30 days — is the window for preparation. Use it. The Wisconsin Dementia Care Navigator includes an ADRC Screening Prep Worksheet with a structured ADL journal format, the specific functional domains the screener evaluates, and a document-organization checklist to bring to the appointment. Starting the diary immediately when the screen is scheduled gives you the strongest documentation by the time the assessor arrives.

Frequently Asked Questions

Can I request a specific date and time for the functional screen?

You can ask about available dates and times. Choose one that lets a caregiver participate and describe your parent's usual difficulties accurately; use the diary to show variation rather than trying to schedule around a single unusually good or bad day.

What if my parent is denied and I disagree with the assessment?

You can appeal the determination by filing a fair hearing request with the Wisconsin Division of Hearings and Appeals. For a direct denial, the research lists a 45-calendar-day deadline from the notice's effective date. The ADRC can assist with the process, and your ADL diary and medical documentation become critical evidence.

Does the functional screen determine how much Medicaid pays?

The screen determines functional eligibility — whether your parent qualifies for publicly funded long-term care. Financial eligibility (assets and income) is evaluated separately by the county Income Maintenance agency. Both must be met for Medicaid coverage to begin.

How often is the functional screen repeated?

An annual rescreen is required after enrollment, and a change-in-condition rescreen must be completed if your parent's condition substantially changes. For progressive dementia, rescreens typically confirm ongoing or increased need.

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