$0 Delaware — Choosing Care Decision Checklist

Caregiver Support Programs in Delaware: Resources for Families Caring for Aging Parents

State-Level Caregiver Support Through DSAAPD

Delaware channels most caregiver services through the Division of Services for Aging and Adults with Physical Disabilities (DSAAPD), which operates the Aging and Disability Resource Center (ADRC). Contact the ADRC at 1-800-223-9074 or email [email protected] to get started — certified counselors provide free, unbiased options counseling for both the person needing care and their family caregiver.

DSAAPD connects caregivers with support services through the Aging and Disability Resource Center (ADRC). Ask the ADRC which programs are available for your family; examples of support include:

  • Information and access assistance — connecting caregivers with local programs and benefits
  • Individual counseling and support groups — both in-person and virtual options across all three counties
  • Caregiver training — practical skills for managing medications, transfers, nutrition, and behavioral challenges
  • Respite care — temporary relief so caregivers can rest, run errands, or handle their own medical appointments
  • Supplemental services — limited funding for home modifications, assistive devices, or incontinence supplies when no other program covers them

Eligibility and availability depend on the specific program and current funding. Contact the ADRC to ask whether Medicaid status, county, or other criteria apply and whether a waitlist exists.

Respite Care Options

Caregiver burnout is the leading reason families move to facility placement sooner than medically necessary. Delaware offers several respite pathways:

DSHP Plus respite — If the care recipient qualifies for Medicaid through the Diamond State Health Plan Plus, ask the MCO case manager whether authorized respite hours can be included in the member's Plan of Care and which in-network provider can deliver them.

Lifespan Respite vouchers — DSAAPD's Lifespan Respite Program allows eligible caregivers to apply for limited respite vouchers. Ask the ADRC about current eligibility and availability.

Adult day services — Delaware's licensed adult day centers offer structured daytime programs at a median cost of $2,193 per month (roughly $95–$100 per day). Centers in all three counties provide socialization, meals, basic health monitoring, and activities. For DSHP Plus enrollees, adult day services are a covered benefit. For private-pay families, it's the most affordable formal care option in the state.

Faith-based and volunteer programs — Several churches and community organizations in Delaware run informal respite networks. These aren't state-regulated and quality varies, but they can fill gaps when formal programs have waitlists.

County-Level Resources

New Castle County has the densest provider network and shortest waitlists. The county's proximity to Philadelphia and Wilmington means more home care agencies, adult day centers, and support groups operate here than in the rest of the state combined.

Kent County resources center around the Dover area. The DSAAPD Dover office coordinates caregiver support groups and training sessions. Wait times for in-home respite can run several weeks.

Sussex County faces the most acute provider shortage despite having the fastest-growing senior population in the state — a 29.3% population expansion between 2010 and 2022, heavily concentrated among retirees. The CHEER Program (Comprehensive Health, Education, Exercise, and Recreation) in Sussex County operates senior centers in Georgetown, Lewes, Milford, and other communities, offering meals, transportation, and social programming. Both Kent and Sussex counties are federally designated Health Professional Shortage Areas, which affects how quickly families can get the physician evaluations needed for program eligibility.

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Self-Directed Care: Hiring a Family Member

Delaware's DSHP Plus program offers self-directed services that give a member more choice over who provides care and how it is delivered. Ask the MCO case manager whether self-direction is available for the member's authorized Plan of Care and what provider qualifications apply. This option addresses a common frustration: adult children who are already providing daily care but absorbing the financial cost themselves.

The member still must meet DSHP Plus eligibility and have services authorized in a Plan of Care; ask the MCO case manager about self-direction qualifications and setup.

When Informal Caregiving Isn't Enough

Most families hit a wall. The parent's needs escalate beyond what respite and support programs can bridge — falls become frequent, medications get missed, or cognitive decline accelerates past what the home environment can safely accommodate.

When you reach that point, the decision shifts from "how do we keep doing this" to "what level of care does our parent actually need." The Delaware Care Decision Toolkit walks through that transition systematically — from the clinical assessment and Medicaid eligibility screen through MCO selection and facility vetting — so you're making the decision with a clear framework rather than in crisis mode.

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