$0 Florida — Dementia Care Resource Checklist

Aging and Disability Resource Center Florida: What ADRCs Do and How to Use Them

What Florida's ADRCs Actually Do

Florida has 11 regional Aging and Disability Resource Centers, each run by a local Area Agency on Aging. They're the single entry point for almost every state-funded elder care program — Medicaid long-term care, the Alzheimer's Disease Initiative, Community Care for the Elderly, respite care, home-delivered meals, and adult day services.

You reach them through the Florida Elder Helpline at 1-800-963-5337. That number routes to the ADRC covering your parent's county. The call is free, and it starts the intake process for long-term care services.

What most families don't realize is that this first phone call isn't just an information request. It's a clinical screening. The caseworker walks through the DOEA Form 701S — a structured assessment of your parent's physical limitations, cognitive deficits, living situation, and caregiver capacity. The answers generate a Priority Score (Rank 1 through 5) that determines where your parent lands on the Assessed Prioritized Consumer List (APCL), the statewide waitlist for Medicaid-funded long-term care services.

The 701S Screening: What Happens on the Call

The screening takes roughly 45 minutes. The caseworker asks detailed questions about your parent's Activities of Daily Living (bathing, dressing, toileting, transferring, eating) and Instrumental Activities of Daily Living (managing medications, cooking, handling finances, using transportation).

For dementia caregivers, the cognitive and behavioral questions matter most. The caseworker asks about wandering episodes, the frequency of confusion or disorientation, whether the parent recognizes family members, their ability to be left alone safely, and any behavioral disruptions that put the parent or others at risk.

Here's the problem: families routinely understate deficits. When the caseworker asks whether Mom can dress herself, the instinct is to say "mostly, yes" — even though you're laying out her clothes, buttoning her shirt, and redirecting her three times before she's dressed. That answer earns a low priority score, which means years on the waitlist behind more than 17,000 other people.

Answer based on your parent's worst days, not their best. The screening is designed to capture the full scope of care needs, and downplaying those needs directly hurts your parent's access to services.

The 11 ADRC Regions

Each ADRC covers a specific group of counties. The major ones:

  • Area Agency on Aging for Southwest Florida (Charlotte, Collier, DeSoto, Glades, Hendry, Lee, Sarasota)
  • Alliance for Aging (Miami-Dade, Monroe)
  • Area Agency on Aging of Pasco-Pinellas (Pasco, Pinellas)
  • Senior Resource Alliance (Brevard, Orange, Osceola, Seminole)
  • ElderSource (Baker, Clay, Duval, Flagler, Nassau, St. Johns, Volusia)

The Elder Helpline routes automatically by county, so you don't need to know which ADRC covers your area. If your parent lives in one county and you live in another (or out of state entirely), the call goes to the ADRC in the parent's county — that's where services are delivered.

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What Comes After the Screening

After the 701S screening, one of several things happens:

High priority score (Rank 4-5): Your parent is placed on the APCL near the top. When a slot opens in their region, the DOEA's CARES program schedules a face-to-face evaluation (Form 701B) at your parent's home or facility. That in-person assessment confirms the level of care needed and triggers the Medicaid application process.

Low priority score (Rank 1-3): Your parent joins the waitlist but may wait years for services. If their condition worsens — a hospitalization, a serious fall, the loss of a primary caregiver — you can call the ADRC to request a rescreening. A "significant change in circumstances" can bump the priority score.

Imminent risk (Rank 7-8): If the screening reveals an immediate safety crisis — homelessness, active abuse or neglect, or an Adult Protective Services referral — the parent may bypass the waitlist entirely.

The ADRC also connects families with programs that don't require a waitlist, like the Florida SHINE Program (free Medicare and insurance counseling), Meals on Wheels, and local caregiver support groups.

How to Prepare for the Call

Before you dial 1-800-963-5337, gather this information:

  • Your parent's full name, date of birth, and Social Security number
  • Current address and living situation (alone, with spouse, with you, in a facility)
  • List of medical diagnoses, especially any dementia or Alzheimer's diagnosis
  • Current medications and who manages them
  • A realistic description of what your parent can and cannot do independently
  • Any recent hospitalizations, falls, or wandering incidents
  • Your own caregiving limitations — work schedule, distance, health issues

The ADRC call is the starting line for Florida's long-term care system. Getting it right the first time can save your family months or years of waiting. Our Florida Dementia Care Guide includes a 701S prep worksheet that walks through every question the screener will ask, with coaching notes on how to describe deficits accurately.

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